Ebook Free Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia (A Johns Hopkins Press Health Book)

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Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia (A Johns Hopkins Press Health Book)

Ebook Free Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia (A Johns Hopkins Press Health Book)

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Review

"A must-read for patients and health care professionals seeking information about HHT, an uncommon disease diagnosis. Families will find answers in this thoroughly researched resource, learn about HHT’s psychological impact, and discover coping strategies for living a long and happy life as they navigate their medical journey." (Marianne Clancy, Cure HHT/HHT Foundation International Executive Director)"I strongly recommend this HHT guide to patients, families, and doctors. It provides a wide range of useful information for both the newly diagnosed and veterans. Patient stories give it a refreshing human touch, and the author’s profession combined with her personal experience make it a uniquely informative book." (Alyson Abbott Conger, Cure HHT Board Director, person with HHT)"This is an outstanding, informative book. Covering medical, social, and emotional aspects of HHT, this work tackles everything a patient may encounter when living with HHT. In addition to being a valuable resource for patients, all physicians could benefit from research and understanding of this disease. I highly recommend it." (Sally E. Mitchell, MD, Johns Hopkins HHT Center Medical Director)"This book is packed with tons of useful information such as the most effective treatments for nosebleeds and how to deal with insurance companies. Dr. Palmer cuts through the jargon of HHT to share strategies for the diagnosis and management of HHT―helping to convert disability and fear into physical treatment, emotional well-being, and hope." (James Gossage, MD, Cure HHT Medical Director)"This book is an excellent basic overview of HHT. It describes the condition, the difficulties often found in diagnosis, current and potential future treatments, as well as emotional and social effects for both patients and their families along with coping strategies. Throughout, the ability to live well with knowledge and appropriate care is emphasized." (Jeffrey Pollak, MD, Katharine Henderson, MS, Department of Radiology and Biomedical Imaging, Yale School of Medicine, New Haven, CT Journal of Radiology Nursing)

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About the Author

Sara Palmer, PhD, is a psychologist and an assistant professor in the Department of Physical Medicine and Rehabilitation at Johns Hopkins University School of Medicine. She is the coauthor of Spinal Cord Injury: A Guide for Living; When Your Spouse Has a Stroke: Caring for Your Partner, Yourself, and Your Relationship; and Just One of the Kids: Raising a Resilient Family When One of Your Children Has a Physical Disability.

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Product details

Series: A Johns Hopkins Press Health Book

Paperback: 160 pages

Publisher: Johns Hopkins University Press; 1 edition (December 1, 2017)

Language: English

ISBN-10: 1421423901

ISBN-13: 978-1421423906

Product Dimensions:

6 x 0.4 x 9 inches

Shipping Weight: 9.6 ounces (View shipping rates and policies)

Average Customer Review:

5.0 out of 5 stars

2 customer reviews

Amazon Best Sellers Rank:

#627,512 in Books (See Top 100 in Books)

Excellent information for someone suffering with this disease

All you need to know about HHT and more ....Great information, great book a must have. 👍

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Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia (A Johns Hopkins Press Health Book) PDF

Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia (A Johns Hopkins Press Health Book) PDF

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Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia (A Johns Hopkins Press Health Book) PDF